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Theme report for Health and medicine #39526 Public

Created for The Alkaptonuria Society 4 months ago

3 opportunities checked

Main Grants by Garfield Weston Foundation #588810

Garfield Weston Foundation is a family-founded, grant-making trust which has been supporting charities across the UK for over 50 years. From small community groups to large national institutions, their aim is to support organisations that have effective solutions to helping those most in need. For regular grants - under £100,000 - they operata a one stage application process and applicants will know the outcome of their request within four months of applying. They accept applications at any time so there are no formal deadlines for submitting applications that you need to worry about.

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India Open Grants by Paul Hamlyn Foundation #588809

This Fund seeks to meet our strategic aim to enable vulnerable communities living in priority geographical areas to improve their lives.

Many communities in India have inherent strengths which are often overlooked when modern development frameworks are used to view them. They have closely knit societies, progressive views and approaches to resource utilisation and sustainability, and are extremely conscious of their relationship with the environment. Their traditional knowledge has relevance to modern ways of living.

But traditional communities face many challenges. They are riven by attitudes that promote inequality, mostly due to caste. They are strongly patriarchal and not necessarily democratic in their outlook. The opening up of spaces, development of infrastructure, particularly roads, and hegemony of the modern development paradigm have all led them to become vulnerable. They are now unfortunately living on the margins and have been excluded in the development process.

Movements, over time, of people to urban centres, driven by economic forces, have transported some of these issues to urban centres. Urban development concerns emerge largely around building a balance between the hugely important roles that migrants have and will play and the ability of urban centres to provide for them. Addressing the concerns of the urban poor is a significant development challenge, but knowledge and experience is far less than for rural settings.

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Major Grants by Garfield Weston Foundation #588808

For application of £100,000 or more. These are reviewed at one of the Foundation’s eight Board meetings a year and are carefully planned in advance to be fair to all applicants. If you are considering applying for a major grant, please start by sending a one page summary to Grace da Rocha via gdarocha@garfieldweston.org outlining what you are raising funds for, the total cost and fundraising target. We can give you bespoke guidance on whether you are eligible. Please note that if you are applying for £100,000 or more we typically expect your project and/or annual income to be in excess of £1 million. Please do not apply for a major grant through our website.

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Provides Revenue - Project grant funding
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Proposal
Title
The SOFIA-Paediatric Project
Description
The AKU Society supports patients all over the world with the first known genetic disease, Alkaptonuria (AKU). Alkaptonuria is an extremely rare genetic condition, which can cause significant damage to the bones, cartilage and tissues. We have secured funding for our UK part of the study but we need funding for our other paediatric hospitals in Europe (one in Paris, France and another in Piešťany, Slovakia.) We have 15 children from Paris and 15 from Piešťany, who would have scans, ultrasounds and blood/urine collections to allow us to understand at what age the damaging symptoms of AKU starts. We can then start to administer the drug we have available (nitisinone) to stop children from growing up with AKU.
Support type
Revenue - Project
Amount sought
Between £72,920 and £72,920
Area of benefit
International - Austria, Belarus, Belgium, Bolivia, Bosnia and Herzegovina, Bulgaria, Croatia, Czech Republic, Denmark, Estonia, Finland, France, Germany, Greece, Italy, Malta, Norway, Poland, Portugal, Romania, Slovakia, Slovenia, Spain, Sweden, Switzerland, The Netherlands, Worldwide, and United Kingdom
Themes
Children and young people • Health and medicine • Disability • Medical research • Scientific research
Recipient
Name
The Alkaptonuria Society
Type
A charitable organisation - Charity registered in England and Wales
Country
Worldwide
Area
Worldwide
Annual income
£100k - £999k
Operating for
4 years or more